The same sense of expectation. The nursery I had selected for our two-year-old son; my maternity leave; the bunk beds; the summer holiday suitable for a newborn baby. On the next shift, the new midwife asked us again. By my own hand, I had to end the pregnancy. But the closeness has remained after the drama has died down. I couldn't bear to see the baby and asked the midwife to take him away immediately. Others, including those who had been given leaflets to read about the scan beforehand as well as some who were health professionals, said that they had been nave about the 20-week scan. So I suppose from that aspect, mind you having not been told that or sitting there, I wouldn't have thought necessarily that was odd. Maybe our son would have overcome his problems, survived his illnesses, led a happy life. I felt crushed, I wanted him to at least acknowledge what had been found already. 12/12/2012 22:41. And how wrong could they be? I came back probably about 17 weeks pregnant and had the anomaly scan at 20 weeks and like most people expected everything to be fine and to come away with a lovely picture but unfortunately that isn't what happened. This article was amended on 24 November 2015 to anonymise the writer. Looked exactly like our two year old as a baby. Next most likely is that baby doesn't co-operate and they can't see some parts of anatomy and call you back 2 weeks later just because they couldn't see (i had this but because twin pregnancy I was due to be scanned 2 weeks later anyway). And that was scanning up from the above the head, then you were coming up through the child's head, so you were seeing the chambers in the brain, sort of it was evident in all four chambers of the brain, then suddenly one chamber was empty. I still feel guilty, I still cry at random times. I then found that soft markers means 'vague unproven suggestion of a link', and that echogenic locii are small concentrations of calcium which are incredibly common and harmless. No sort of questions about, 'Do you want to know whether it's a boy or a girl?' I want to enjoy my son again, without any reservations. Yeah - in, stomach, out. So we left it there, and we didn't actually think that there was anything really to worry about after that scan. I felt sad, but not the complete devastation of the last scan as they had seen a change of some sort. But you know I knew we had, we had to make a decision that was right for the baby as well. How common is it for 2nd baby to come early..? For women who have been given distressing news about their baby during the scan, there should be a health professional available to provide immediate support. b>Bad news at 20 week scan. As I left the room to compose myself. Health professionals use the 18-20 week scan to examine the baby's size and position, and also to check if his/her brain, heart, lungs and other internal organs are developing as expected. To comment on this thread you need to create a Mumsnet account. We had the baby cremated. We need to have your opinion'. I know I could have delivered him in a quarter of the time, but I couldn't bear the thought of him leaving me. I had no issues at my 20wk scan with DD - and neither did any of my antenatal group (9 mums). We're still not at the end of our journey, but we're much further along. The pain was bearable but uncomfortable, the hospital rang me a few days later and asked me how I was. Mumsnet carries some affiliate marketing links, so if you buy something through our posts, we may get a small share of the sale (more details here), tbh, they never give you good news at scans. I pray it's just her heart but I can't see anything else is wrong as I have been scanned by a consultant since I was 14 weeks and every time he has said everything looks okay and she is growing consistently. Still, the consultant thought things would be OK. ABDOMINAL CIRCUMFERENCE MEASUREMENT AT 20 WEEK SCAN. There was cause for concern. But my brain had been given a train of thought that was impossible to stop. Again the legs were quite twisted, they said that the baby's sternum was very short - things weren't in proportion you know - the head was quite large, the neck was very thick, there wasn't really like a neck as such it was just things were kind of - there were lots of things that obviously the consultant could see that we weren't aware of. I couldn't bring myself to push. I can't remember the exact words but she said, 'There might be some fatal problems with your baby'. This scan takes place between 18 weeks and 20 weeks 6 days of pregnancy and is commonly called the 20-week scan. So I sort of went home quite, fairly kind of happy and I, at, at this point I hadn't any idea things could go wrong anyway. 'I was having nightmares and panic attacks. . Immediately I knew what decision we should take. All pregnant women should be given the booklet by their midwife or GP Screening tests for you and your baby by Public Health England, which gives detailed information about the types of scan offered and what they are looking for. It was a bit worrying but on the plus side I got an extra couple of scans and an extra couple of pictures. We talked all night and thanked God for crap television. We understand the real meaning of "shit happens". It was far too much power; neither of us wanted it. Most scans show that babies seem to be developing as expected, and none of the 11 conditions are found. An hour passed and I started to panic. So I no longer trusted my instincts. And it turned out the baby's heart wasn't forming properly, the chambers weren't forming properly. I was given a leaflet and told to return four days later to see the consultant. The weeks since that day have been very weird. I was booked back in to discuss management options, if nothing had happened. Thick milky discharge at 14 weeks.tmi pic attached. unfortunately the 20 week anomaly scan can pick up serious issues, hearing heart beats at midwife appointment doesn't let us know what's going on inside the body in detail. So carried on with the plans, and, you know, planning for the, another baby to come along and then we went for a 20- week scan which is obviously the big one and very exciting, seeing all the arms and legs and once again everything was going fine, 'Look here's the baby, here's the length of baby'. There was complete silence during the scan. Well send you a link to a feedback form. By the time I left the hospital, I was in shock. A black and white picture of your baby will then be seen on the ultrasound screen. To help us improve GOV.UK, wed like to know more about your visit today. I want to stop having such horrible thoughts. Sometimes a post mortem was needed to confirm the 20-week diagnosis to see if the baby had inherited a genetic problem (such as Fowler syndrome - see 'Resources'). He sounded like a wild animal in pain, deep pain. There was a very marked lack of amniotic fluid which made it difficult, not even for the scanners to see, that made the picture of the scan look very, very different. This publication is available at https://www.gov.uk/government/publications/screening-tests-for-you-and-your-baby/11-physical-conditions-20-week-scan. I give obsessively to charity, especially those linked to sick children. We, I was with my mum, and they scanned and found choroid plexus cysts on the brain, which is just a mark, it's a marker on the brain, it's a, what they call a 'soft marker'. Eventually, the midwife said to us very sweetly, "I think we should deliver the baby now." But I still didn't want to be the one who stopped this baby's chance to live. [Husband] couldn't make it. . I used to think the feeling of your baby kicking inside you and the sight of a foot poking against your skin were the most fantastic things in the world. So at 20 weeks I went for my scan with my husband, with my daughter, to get our photographs. Most scans are carried out by specially trained staff called sonographers. There are no known risks to your baby or the mother from having an ultrasound scan but it is important that you consider carefully whether or not to have the 20-week scan. That he was small. Our week-by-week PREGNANCY emails are a must for parents-to-be. But other than that everything was fine. And before they gave me any of the results she asked a colleague to come and told me she wanted to check something, with a colleague, and by then I was getting very concerned because I'd never had that happen before. In some very serious rare cases, where no treatment is possible, the baby will die soon after it is born or during pregnancy. My partner tried to remain calm, and at my request rang my mum. If you are offered further tests, you will be given more information about them so that you can decide whether or not you want to have them. As soon as we arrived, we were shown to this little room. Just doing it. As I lay down, and the sonographer started, I could see there was something wrong. Baby loss support She just said, 'It's a bit short, it needs to be checked' again basically. Emma was 20 weeks' pregnant when a routine scan revealed that the baby she was expecting had Down's syndrome and heart problems. So it was quite common, this is what happens. I wanted to be a passive patient while the doctor did what he had to do. So it was just, we were coming up to the 20-week scan and I was just getting more relaxed, just actually starting to look at maybe baby catalogues or, you know, going down the baby aisle at the shops, which I'd always avoided. This publication is licensed under the terms of the Open Government Licence v3.0 except where otherwise stated. We would terminate the pregnancy. It was exactly like the labour I had with my first child. We scattered his ashes over a bunch of snowdrops. I am a darker, harder version of myself. So he went out for a walk. When he came back, he agreed on a termination. Very occasionally this second scan cannot be completed, for example because: In this case you will not be offered another screening scan but you will offered an all over physical examination for your baby after birth. Well, at the regional hospital it was a 3-D scan. And you could see, where you should have a picture of 4 chambers, you could really see 2. The midwife was on the verge of tears and I felt responsible. I was wondering if anyone has been is this situation and can give me a glimmer of hope. Severe chromosomal conditions such as Edwards' syndrome are now often picked up in the first trimester antenatal screening but itwill usually be more obviousat the 18- 20 week scan, though usually a firm diagnosis will not be made until one or two specialists have weighed up all available evidence about the baby - which usually means that another expert needs to scan the baby again, or until the woman has had an amniocentesis. Surely he couldn't have missed anything else that is so serious x. Public Health England (PHE) created this information on behalf of the NHS. And you know, we were laughing and joking. Smiling at myself and picturing me and Sam becoming parents. He told me that they may want to do blood tests, but that 'he didn't see the point'. Mumsnet carries some affiliate marketing links, so if you buy something through our posts, we may get a small share of the sale (more details here). It is also sometimes referred to as the mid-pregnancy scan . As I lay down, and the sonographer started, I could see there was something wrong. No discussion, no quiet contemplation. And everybody knows and everything is right. That he - I think I was 21 weeks and 3 days, and he was coming up at 19 weeks and 4 days, or something like that. It would have been nice to see someone straight away because I was in such shock. The scan will look in detail at your babys bones, heart, brain, spinal cord, face, kidneys and abdomen. What happens at the second midwife appointment? It is impossible to escape them and each one underlines your loss. I didn't have a clue. The contractions started very quickly and within an hour my waters had broken. And in this instance the scan was very evident that there was something very seriously wrong. And at that, I let out a scream I think. But it is a soft marker for Edwards' syndrome. Limitations of the 18-20 week scan And my partner and I would have a completely different life from the one we'd imagined. Christmas came and went in a blur of emotion, it felt so wrong to be celebrating when we were in such turmoil. So we went home really and I sort of had to think about it all night. You do not have to have the scan. And, sometimes, I wish I had invited my whole family into the hospital room to see him. I know it sounds odd that you want to hear that it's wrong, but you, you know it's wrong, and you, you want to be reassured either that it's okay or is there something seriously wrong. But the consultant had found more spots on the heart and the measurements were the same. Like many things, the theory is very different from the reality. I let out an animal scream and [wife] kind of leapt onto me on the bed. We strongly advise readers not to take drugs that are not prescribed by your qualified healthcare provider. I agreed to an internal scan as the sonographer said we could get a better picture of what was happening. So once again we were right back down, really no, really not knowing what to expect. The ultimate betrayal. So had to come back in a week's time for a scan, which again is quite a common thing I found out. I want to be nice again. And, it does not occur to you in the slightest. 15/02/2014 08:02. Fine, go on my own. Soon, the doctor came and inserted the tablets that would induce labour. You've had your, you know, you've had your triple test and everything was fine. Dont include personal or financial information like your National Insurance number or credit card details. Just wonder whether anyone had ever been told? So when that happened to us I really didn't worry, I thought, you know, it was literally the baby was in awkward position, they couldn't see the heart and that was why. It feels very lonely and isolating. This short video explains screening for 11 physical conditions in pregnancy. Went off for the 20-week scan, which you didn't, you weren't there, were you, for the first scan? It felt as if we had gone power crazy. I mean the lady who was scanning was very quiet for a long time. And they took us out of the scanning room, into a more quiet room while they typed up the report. But she told us, she told us, she gave us some more detail, she said, 'There's this, there's a big gap in the brain where there shouldn't be'. Another sick joke. Because we knew that that wasn't normal, that wasn't what we'd experienced before, it wasn't just the, 'There's the arm, there's the leg, oh look the baby's moving'. If one of the conditions is found or suspected, the sonographer may ask for a second opinion from another member of staff. Sometimes doctors will wait to give the baby more time to develop and carry out repeat scans - this had confused several parents we talked to who had gone for repeat scans not knowing that the baby might have a problem. The rarest scenario is that the baby is severely ill and choices will need to be made. I was then told yet again bad news. She endured many agonising rounds of scans and tests, and unfortunately met with some unhelpful attitudes from some healthcare professionals. And, faced with feeling sorry for myself or feeling sorry for my child, I know which I'd choose. 'Yes, if that's okay with you,' kind of thing, like you do. I endured 12 hours of medication and in the early hours February 7, 56 days after my first scan (at nearly 18 weeks), I miscarried our babies. Mm-hm. At which point they turned round and said, 'Well, there is something very seriously wrong with the baby, we don't know exactly what, but you do need to have a more in-depth scan at your regional hospital to find out the detail'. I've been incredibly lucky to have such amazing support from Sam, my mum, and close friends and family. The same anxious wait for a little, pathetic cry. My belly was growing and I was feeling great. Can you remember that minute. Several women had taken young children with them to the 20-week scan because they expected to see 'nice pictures of the baby'. They sort of drew some diagrams, and they said, 'But we need to refer you to a specialist to confirm the diagnosis'. He then told us what the prognosis would mean for the child. It doesn't remove the guilt, but I don't know what else to do. I hadn't thought about the mechanics of such a late termination, but had assumed it would mean some kind of operation. I noticed the box of tissues on the table. It was interesting - well it was fantastic to see this fetus and to see this child that was yours that was horribly ill - but you didn't really get much opportunity to see that because the consultant was more about measurements and all sorts of blood flow and various other screens coming up. Somehow, I walked from the sofa up to the bathroom and told my partner. We left for home feeling completely numb. I was another one who did get bad news at the 20 week scan. I broke down and started hitting my disgusting body that had done this. She brought up a picture of the heart on the screen. Though the 18-20 week scan can detect when certain parts of the baby's body have grown abnormally, it may not be possible for clinicians to identify why it has happened or make a firm diagnosis based on the scan alone. DS had 2 soft markers: talipes (club foot) and 'echogenic locii' somewhere - heart I think. I remained positive, we researched lots of cases of mistaken dates, inconclusive scans, and compared them to our situation; scrutinising everything to try and believe it was all one big misunderstanding. And the local hospital wanted to send us off to the regional hospital to actually confirm that, and were not really prepared to say at that time that there was something very seriously wrong. The 18 -20 week fetal anomaly scan is a watershed in most pregnancies because for the majority of women it will be the last time they are scanned before giving birth. Some people had underestimated how serious any abnormality found at this stage could be for the baby. So obviously quite relaxed. No one else felt him kick. You may need to have a full bladder when you come for the appointment. Sometimes a post mortem was needed to confirm the 20-week diagnosis to see if the baby had inherited a genetic problem (such as Fowler syndrome - see '. We talked about the different sorts of pain relief I could have and I opted for a morphine drip, which I could control. You will be able to discuss this with your midwife or consultant. I felt empty, scared, guilty and incredibly heartbroken. Unfortunately I was not met with a compassionate sonographer. It felt so wrong. I then had to wait in the room along with many other patients for an hour so they could observe me. SO much upset and needless angst has been caused by 'soft markers' found at scans. I think I don't everything just seems a real blur because it was, it was such a strange experience. Let a mum know you're thinking of them send one of our personalised Mother's Day cards today, Home It sounds crazy, but I just knew. Dont worry we wont send you spam or share your email address with anyone. Not marginalised into being a victim. I travelled to work that day feeling amazing. But it's bloody hard being miserable the whole time. Again, we weren't understood. Two days, after on Christmas Eve, (my 12 week date) I had more blood tests. It felt like a lifetime to reach our 12-week-scan. My wife had been very, very healthy, more healthy than the first pregnancy, and of course was shattered by the fact that the news, the news was appalling, very serious faces. Except for the persistent, nagging doubts. Please ask your hospital about this before your appointment. I felt I needed proof of what was wrong before I take such a huge decision and that I couldn't do it based on what someone had written on, on the paper. And there [sighs] was a very dark patch over one, where the eye socket was, and they didn't know it, in the Edward's babies sometimes the eyes don't develop properly, or it might have been bleeding, they weren't very sure. There, I would give birth. And I could see, before she even said anything I could see that there was something wrong with the heart. Others, including those who had been given leaflets to read about the scan beforehand as well as some who were health professionals, said that they had been nave about the 20-week scan. He looked excited. I went away and came back, and she couldn't get a good picture. Scans cannot find all conditions. The next day, it was confirmed that my bloods had again dropped. We left the hospital a couple of hours later. I loved him instantly and didn't want to let him go. And having read, since read my information on Edwards' syndrome, a good 85 per cent have problems with the heart. The scan will find about half (50%) of those babies who have heart defects. It took 20 minutes to push him out. Everywhere you look, there are happy, fat, smug pregnant women. Wishing to be anywhere, but here being told the same agonising truth over and over again. Anyway we went in for the meeting with the consultant on this particular time, and we'd got to, I was 30 weeks pregnant by then. I managed to tell my mum, who said she would come with us to the hospital. But that was too easy. The sonographer will be able to tell you the results of the scan at the time. Some people we talked to had not had a 18-20-week scan, either because their babies' abnormalities had been detected by earlier . Our baby was beautiful. Read full disclaimer. You will then be asked to raise your top to your chest and lower your skirt or trousers to your hips. 18-20 week scans provide clinicians with more information than earlier scans because by18 weeks a healthy baby should be larger and better developed. Instinctively, did it feel right? Some parents wondered if it was possible to have the same scan done at 16 weeks rather than 20 weeks. So, in the end, we said we would arrange our own funeral. I just want to be normal again. I went home feeling crushed; Sam and I both felt helpless. I didn't sleep that night I don't think. Check benefits and financial support you can get, Find out about the Energy Bills Support Scheme, NHS fetal anomaly screening programme (FASP), Screening tests for you and your baby (STFYAYB), nationalarchives.gov.uk/doc/open-government-licence/version/3, more information and details of support groups.

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